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National Coordinating Center for the Regional Genetics Networks
This announcement solicits applications for a National Coordinating Center (NCC) to provide support for the Regional Genetics Networks (RGNs) in improving access to genetics services, with a particular emphasis on the medically underserved populations. The program aligns with the statutory authority for Special Projects of Regional and National Significance (SPRANS), Title V, § 501(a)(2) of the Social Security Act, as amended (42 U.S.C. 701 (a)(2)) that requires HRSA to provide “for genetic disease testing, counseling, and information development and dissemination programs.”
The goals of the NCC are to: 1) provide technical assistance and expertise in leading quality improvement activities; 2) address national issues related to genetics care service delivery system including financing and insurance coverage; 3) support the activities of the RGNs to meet the needs of the medically underserved with genetic conditions; and 4) coordinate the evaluation of changes in access to services for patients with genetic conditions, especially the medically underserved.
In partnership with the NCC, RGNs will focus on improving access to: 1) genetic services by creating a regional system of care for the identification, referral, and treatment of individuals with genetic conditions and their families; and 2) genomic information for primary care providers, public health, and families.
Each RGN will serve as the backbone organization in the region to link individuals and families to genetic services. A focus will be on linking medically underserved populations (based on poverty, rural geographic location, and/or populations that experience health disparities)1 to genetic service providers, and promoting efficient genetic services practices through the use of technologies such as telehealth.
Multiple applications from an organization are not allowable.
- Duke Internal Deadline:November 8, 2016
- Sponsor Deadline: December 12, 2016
Per 42 CFR § 51a.3 (a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply. Faithbased and community-based organizations are eligible to apply.
Approximately $800,000 is expected to be available annually to fund one (1) recipient. You may apply for a ceiling amount of up to $800,000 per year. The actual amount available will not be determined until enactment of the final FY 2017 federal budget. This program announcement is subject to the appropriation of funds, and is a contingency action taken to ensure that, should funds become available for this purpose, applications can be processed, and funds can be awarded in a timely manner. The project period is June 1, 2017 through May 31, 2020, three (3) years
Owing to the sponsor's restriction on the number of applications that may be submitted from Duke, anyone wishing to pursue nomination should submit the following materials as one PDF.
* A letter of support from dean or chair - 1 to 1.5 pages
* Project summary - 2 to 4 pages
* CV or Biosketch of project leader
Applicants will need to submit internal materials through My Research Proposal.(Code ILN) https://www.grantinterface.com/Common/LogOn.aspx?eqs=ApVvmgXCk2Uj7AzWyDEJKQ2
Instructions for setting up your account and uploading internal applications can be found here: https://ors.duke.edu/sites/default/files/Applicant Instructions_FINAL.pdf