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Newborn Screening Data Repository and Technical Assistance Program
This program announcement solicits applications for the Newborn Screening Data Repository and Technical Assistance Program.
The purpose of this cooperative agreement is to enable the recipients to:
1) Enhance, improve and expand the ability of states and local public health agencies to provide screening, counseling, or health care services to newborns and children having or at risk for heritable disorders;
2) Assist in providing health care practitioners and newborn screening laboratory personnel with education in newborn screening and training in relevant and new technologies in newborn screening and congenital, genetic and metabolic disorders; and
3) Establish, maintain, and operate a system to assess and coordinate follow-up and treatment relating to congenital and genetic (including metabolic) disorders identified through newborn screening.
To fulfill these criteria, the recipient will provide technical assistance to state and local public health agencies, health care professionals, newborn screening laboratory personnel, and other newborn screening stakeholders on the implementation of statebased public health newborn screening. This may be accomplished through resource development, state education and training, policy initiatives, disorder surveillance, evidence-based data collection, evaluation, and collaborative efforts with stakeholders, including federal and non-federal partners.
The overall goal of the Newborn Screening Data Repository and Technical Assistance Program is to reduce morbidity and mortality caused by heritable disorders in newborns and children by enhancing, improving and expanding the newborn screening system. The expected impact of the program is improved health and well-being for infants at-risk for or affected with conditions identified through the newborn screening system.
NOTE: Multiple applications from an organization are not allowable.
- Duke Internal Deadline: April 9, 2018
- Sponsor Deadline: May 22, 2018
A state or a political subdivision of a state; a consortium of two or more states or political subdivisions of states; a territory; a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service; or any other domestic entity with appropriate expertise in newborn screening.
HRSA expects approximately $1,500,000 to be available annually to fund one recipient. You may apply for a ceiling amount of up to $1,500,000 total cost (includes both direct and indirect, facilities, and administrative costs) per year. The actual amounts available will not be determined until enactment of the final FY 2018 federal appropriation. The FY 2018 President’s Budget does not request funding for this program. This program announcement is subject to the appropriation of funds, and is a contingency action taken to ensure that, should funds become available for this purpose, HRSA can process applications and award funds in a timely manner. The period of performance is July 1, 2018 through June 30, 2023 (5 years). Funding beyond the first year is dependent on the availability of appropriated funds for the Newborn Screening Programs in subsequent fiscal years, satisfactory recipient performance, and a decision that continued funding is in the best interest of the Federal Government.
Owing to the sponsor's restriction on the number of applications that may be submitted from Duke, anyone wishing to pursue nomination should submit the following materials as one PDF.
* A letter of support from dean or chair - 1 to 1.5 pages
* Project summary - 2 to 4 pages
* CV or Biosketch of project leader
Please submit internal materials through My Research Proposal. (Code ILN) https://www.grantinterface.com/Common/LogOn.aspx?eqs=ApVvmgXCk2Uj7AzWyDE...
Instructions for setting up your account and uploading internal applications can be found here: https://ors.duke.edu/sites/default/files/Applicant Instructions_FINAL.pdf