NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately will lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants are made possible through the generosity of allies in the rare disease community and supporters who have donated into NORD’s research fund.
Since the program’s launch in 1989, NORD grants have led to the development of two FDA-approved treatments and numerous peer-reviewed publications. More than 200 grants have been awarded representing over $9 million in approved funding.
Amyloidosis
NORD, with donations from the amyloidosis community, is accepting applications for one grant of up to $45,000 US for scientific and/or clinical research studies related to amyloidosis. The deadline for applications is November 25, 2024.
Levy-Yeboa Syndrome
NORD, with fundraising by the Maxwell Family, is accepting applications for one grant of up to $40,000 US for scientific and/or clinical research studies related to Levy-Yeboa syndrome (LYS). The deadline for applications is November 25, 2024.