Orphan Disease Center -- Grant Opportunities

Funding Agency:
University of Pennsylvania

The ODC offers over 50 grant opportunities in 30+ disease areas annually to researchers across the globe, as well as within the Penn and CHOP community. Since 2011, our grant programs have funded $17.2 million in rare disease research.

  • In-home Calcium Diagnostic Device for Hypoparathyroidism Grant Program: The Orphan Disease Center, in collaboration with the Hypopara Research Foundation is thus seeking applications for the creation of a medical diagnostic device that would allow the in-home measurement of calcium in the blood. The goal is to create a device for hypoparathyroidism patients and others with hypocalcemia, which would improve disease management and quality of life by allowing self-administered care at home. We imagine this device revolutionizing disease management for these patients similarly as the glucose monitor has done for diabetic patients. Care providers in theory could provide guidelines for medication adjustment based on results from the device. Grants up to $200,000 over a one year period will be awarded. Deadline for LOI: Sep. 13, 2019

  • Hypoparathyroidism Stem Cell Consortium Grant Program: The Orphan Disease Center, in collaboration with the Hypopara Research Foundation, is seeking grant applications from multidisciplinary teams of scientists that aim to develop a potential long-term therapy for hypoparathyroidism, by using advances in stem cell research to regenerate and transplant parathyroid glands. We expect these research efforts will focus on the biology of parathyroid cell differentiation, although the overall effort must be directed to the longer range goal of developing human treatments. Grants up to $500,000 per year for a two year annually renewable award ($1,000,000 total) will be provided to teams of up to 4 co-principal investigators.  Deadline for LOI: Sep. 9, 2019

  • MILLION DOLLAR BIKE RIDE PILOT GRANT PROGRAM: The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team. All individuals holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation are eligible to respond to this RFA.  Deadline for LOI: Sep. 23, 2019




Engineering and Physical Sciences
Medical - Basic Science
Medical - Clinical Science
Medical - Translational

External Deadline

September 9, 2019