Sickle Cell Disease Data Collection Platform

Funding Agency:
Department of Health and Human Services

This is a Forecasted Opportunity.

The HHS Office of Minority Health is offering a funding opportunity for the design and development of a standardized clinical data collection platform for sickle cell disease (SCD) that can be shared across medical centers and other healthcare facilities. Once implemented, the platform will provide the infrastructure for analyzing data from large SCD patient cohorts, recruiting patients for clinical trials, and identifying new areas for research. This opportunity aligns with HHS Strategic Priority 4 to provide value-based care. BACKGROUND INFORMATION: SCD, estimated to affect 100,000 Americans, is the most common inherited blood disorder in the United States and is characterized by debilitating pain crises, frequent hospitalizations, and chronic end-organ damage. Clinical outcomes for individuals with SCD could be improved through increased adherence to evidence-based treatment guidelines. Standardized clinical data collection platforms have been developed for other conditions (e.g., autism, cystic fibrosis) and have been shown to improve clinical decision making, reduce cost of care, and ultimately improve clinical outcomes. Such a standardized IT platform shared across medical centers is not currently available for SCD and is expected to be an effective tool to improve health outcomes for the SCD population.  

Estimated Post Date: Dec 06, 2019
Estimated Application Due Date: Mar 06, 2020  




Community Outreach and Engagement
Medical - Basic Science
Medical - Clinical Science
Social Sciences

External Deadline

March 6, 2020