Sickle Cell Disease Newborn Screening Follow-Up Program

Funding Agency:
Health Resources and Services Administration


The Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB), Division of Services for Children with Special Health Needs/Genetic Services Branch (DSCSHN/GSB) is accepting applications for fiscal year (FY) 2017 for the Sickle Cell Disease Newborn Screening Follow-Up Program (SCDNBSFP). The purpose of the SCDNBSFP is to provide support for a Sickle Cell Newborn Screening Technical Assistance Center (TAC) that will work with community-based organizations (CBOs) to improve the care of individuals identified with sickle cell disease and sickle cell trait through universal newborn screening, by supporting efforts of CBOs on sickle cell disease education, and by coordinating services.

Multiple applications from an organization are not allowable. 

  • Duke Internal Deadline: October 17, 2016
  • Sponsor Deadline: November 10, 2016

Agency Website

Eligibility Requirements

Per 42 CFR § 51a.3 (a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply. Faithbased and community-based organizations are eligible to apply. 

Amount Description

Approximately $2,904,400 is expected to be available annually to fund one (1) recipient. You may apply for a ceiling amount of up to $2,904,400 per year. The actual amount available will not be determined until enactment of the final FY 2017 federal budget. This program announcement is subject to the appropriation of funds, and is a contingency action taken to ensure that, should funds become available for this purpose, applications can be processed, and funds can be awarded in a timely manner. The project period is June 1, 2017 through May 31, 2021 (four (4) years). 

Funding Type





Community Outreach and Engagement
Medical - Basic Science
Medical - Clinical Science

Internal Nomination

Owing to the sponsor's restriction on the number of applications that may be submitted from Duke, anyone wishing to pursue nomination should submit the following materials as one PDF.

* A letter of support from dean or chair - 1 to 1.5 pages
* Project summary - 2 to 4 pages
* CV or Biosketch of project leader

Applicants will need to submit internal materials through My Research Proposal.(Code ILN)

Instructions for setting up your account and uploading internal applications can be found here: Instructions_FINAL.pdf

Internal Deadline

October 17, 2016

External Deadline

November 10, 2016